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Update to NIH Management of Genomic Summary Results Access

To maximize public benefit from genomic information generated through NIH-supported research in a manner consistent with current scientific and ethical considerations, and to promote of scientific advances while protecting research participants’ privacy interests, NIH is updating its data management procedures under the Genomic Data Sharing Policy to allow unrestricted access to genomic summary results from most NIH-supported studies for health or research purposes. See NOT-OD-19-023. Also see related blog. 
 

This page last updated on: April 25, 2024

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