Notice Number: NOT-HD-20-010
Key Dates
Release Date: March 27, 2020
NOT-HD-19-004
NOT-HD-20-018
Issued by
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Purpose
NICHD is issuing this Notice to alert interested investigators to the transfer of the NCS Vanguard Data and Sample Archive and Access System (NCS Archive) materials to the NICHD Data and Specimen Hub (DASH).
The National Children’s Study Vanguard was a pilot study for a planned cohort study of environmental influences on child health and development. Starting in 2009, the study enrolled over 14,000 participants in over 5,000 families in 40 locations throughout the United States and followed them through 2014. It collected more than 14 million records and nearly 19,000 biological and 5,500 environmental primary samples from which a sample repository of over 250,000 items was created. That information and material was made available through the NCS Archive for approved research projects by qualified investigators beginning in March 2016.
The materials from the NCS Archive site were made available through the NICHD DASH platform beginning March 17, 2020. The NCS Archive site will close April 20, 2020. In accordance with DASH requirements, NCS Archive data files were deidentified by removal of HIPAA identifiers prior to being transferred to DASH.
The NICHD Data and Specimen Hub (DASH) is a centralized NICHD resource for researchers to share and access de-identified data from NICHD-funded research studies for the purposes of secondary research use. DASH also serves as a portal for requesting biospecimens associated with data stored in DASH.
More information is available on the NCS web page of the NICHD public website and NICHD DASH, and until April 20, 2020 on the NCS Archive.
Inquiries
Please direct all inquiries to:
Jack Moye, Jr., MD
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Telephone: 301-594-8624
Email: john.moye@nih.hhs.gov
and Human Services (HHS)
