Full Text PA-96-032 COMMUNICATIVE COMPETENCE OF USERS OF AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) SYSTEMS NIH GUIDE, Volume 25, Number 7, March 8, 1996 PA NUMBER: PA-96-032 P.T. 34 Keywords: Communicative Disorders, Speech National Institute on Deafness and Other Communication Disorders PURPOSE The National Institute on Deafness and Other Communication Disorders (NIDCD) invites applications for the support of research studies on issues related to the communicative competence of users of augmentative and alternative communication (AAC) systems. Such research may lead to a better understanding of the impact of AAC on the development or restoration of communicative competence of individuals with the severe communication difficulties commonly seen in association with developmental or acquired disorders, such as brain injury, and diseases or disorders affecting the oral motor system. It may also define the ways in which augmentative and alternative strategies can influence all phases of communication development and activity. Findings from these studies will direct the establishment and refinement of tools and intervention strategies enabling the development or recovery of communicative function. HEALTHY PEOPLE 2000 The Public Health Service (PHS) is committed to achieving the health promotion and disease prevention objectives of "Healthy People 2000," a PHS-led national activity for setting priority areas. This PA, Communicative Competence of Users of Augmentative and Alternative Communication (AAC) Systems, is related to the priority area of diabetes and chronic disabling conditions. Potential applicants may obtain a copy of "Healthy People 2000" (Full Report: Stock No. 017-001-00474-0 or Summary Report: Stock No. 017-001-00473-1) through the Superintendent of Documents, Government Printing Office, Washington, DC 20402-9325 (telephone 202-512-1800). ELIGIBILITY REQUIREMENTS Applications may be submitted by domestic and foreign, for-profit and non-profit organizations, public and private, such as universities, colleges, hospitals, laboratories, units of state and local governments, and eligible agencies of the Federal government. Foreign institutions are not eligible for First Independent Research Support Transitions (FIRST) (R29) awards. Applications from minority individuals, women, and individuals with disabilities are encouraged. MECHANISM OF SUPPORT The support mechanisms for grants in this area will be the individual investigator-initiated research project grant (R01) and the FIRST (R29) award. RESEARCH OBJECTIVES Oral speech is not possible for individuals with severe communication disorders. Demographic research in several countries reveals that from 8 to 12 persons per 1000 have such severe communication disorders that they cannot meet their daily communication needs using only natural speech and handwriting. The 2 to 2.5 million Americans in this group are all ages and have various disorders. Some examples are: young children with developmental disabilities, teenagers and young adults with traumatic brain injury, middle-aged adults with multiple sclerosis and brain stem strokes, and older adults with amyotrophic lateral sclerosis, Parkinson's disease, and cortical stroke. During the past twenty years, many new technologies and intervention strategies have been used to assist these individuals in communicating. The overall effectiveness of AAC interventions has been documented in a number of anecdotal reports, single case studies, and few group studies. It is apparent that following intervention, many individuals who were previously unable to communicate are able to communicate much more effectively. However, there has been little systematic investigation of the impact of AAC systems on the development or restoration of communicative competence of children and adults with severe communication disorders. The impact of AAC systems, system features, and intervention strategies on all phases of communication development and use requires evaluation. In addition to these primary research goals, many other issues related to understanding the communicative competence of AAC users need to be explored. Communication and language development studies of children using augmentative communication have centered largely on alternative modes of communication used in conjunction with specific instructional approaches. This has provided ways of correcting language deficits and the subsequent or accompanying developmental difficulties often found in this population. Several investigations have reported positive language outcomes, including increases in vocabulary size and use and production of multi -symbol utterances. However, the long-term process of communication, language, and literacy development through augmented means, as well as the broader educational and social implications of this process, has not been analyzed in detail. It is important to determine how the process of communication, language, and literacy learning through augmented means progresses, the theoretical framework underlying this process, the conditions that best facilitate it, and its broader impact on the development of children with a wide range of disabilities. The goal of AAC is to foster and support the development of communicative competence so that individuals who require AAC can participate as fully as possible in home, school, work, and community environments. Little is known, however, about the communicative competence of people who use AAC, or about the skills, strategies, and techniques that contribute to their communicative competence. For example, there is not an accepted definition of or reliable and valid method to measure the communicative competence of those using AAC. The systematic identification of the communicative variables that affect perceptions of communicative competence of AAC users from both the social and personal perspectives, may be a first step. Identifying such variables has implications for selecting valid targets for communication intervention, which bear directly on issues related to quality of life. Successful AAC use depends on a functional compatibility between the motor, cognitive, linguistic, and sensory capabilities of the user and the operational requirements imposed by the AAC system itself. Many aspects of this user-system interface have not been studied thoroughly. These include issues that relate to the special needs considerations across the life span, such as the needs of a child in the early stages of communication and motor development, the special needs of the elderly, the specific requirements of an individual recovering from injury, or the rapidly changing requirements of a patient with a degenerative disorder. For all AAC users, it is important that techniques be developed by which the AAC system can be efficiently customized to reflect the changing needs of the individual. Related areas of the user-system interface that require study are the mechanisms by which residual motor gestures may be recognized by AAC smart systems, and how consistent communication results may be obtained for an individual for whom access involves fluid rather than discrete motor movements. In both educational and medical care arenas, treatment efficacy and outcome studies are needed. Although there is considerable anecdotal evidence of the impact of AAC intervention on the communicative, social, and educational experience of persons with severe communication disorders, there is less information available about the impact of AAC on the vocational lives of these individuals. Furthermore, decisions regarding public policy and health care need to be based on more than anecdotal reports. To this end, empirically based outcomes research on all aspects of AAC interventions is urgently needed. The purpose of this PA is to encourage systematic, hypothesis-driven investigations, considering a variety of experimental design methodologies. The impact of AAC systems and system features on the development or restoration of communicative competence in children and adults with severe communication disorders needs to be known. Examples of topics that may be addressed in applications submitted in response to this program announcement include, but are not limited to, the following issues: o Impact of AAC technologies on the enhancement and development of communication, language, literacy, and natural speech of persons with severe communication disorders. o Influence of user variables (e.g., knowledge, skills, and learning style) on AAC system effectiveness. o Impact of AAC system features on communicative competence of users and listener perception of user competence. o Development of tools and strategies to measure communicative competence (i.e., operational, linguistic, strategic, and social competence) of children and adults who use AAC systems. o Determination of the factors that are related to success and failure of existing AAC interventions across the age span for a variety of communication disorders and communication contexts. o Development of tools to measure the comprehension of symbols in individuals who are unable to respond in a standard communicative mode. o AAC intervention outcome studies in the areas of communication, language and literacy, that include individuals with both developmental and acquired conditions, across causes, across the life span, and in differing environmental and social contexts. o Evaluation of the impact AAC strategies have on user-peer, user-teacher, and user-family social interactions. INCLUSION OF WOMEN AND MINORITIES RESEARCH INVOLVING HUMAN SUBJECTS It is the policy of the NIH that women and members of minority groups and their subpopulations must be included in all NIH supported biomedical and behavioral research projects involving human subjects, unless a clear and compelling rationale and justification is provided that inclusion is inappropriate with respect to the health of the subjects or the purpose of the research. This new policy results from the NIH Revitalization Act of 1993 (Section 492B of Public Law 103-43) and supersedes and strengthens the previous policies (Concerning the Inclusion of Women in Study Populations, and Concerning the Inclusion of Minorities in Study Populations), which have been in effect since 1990. The new policy contains some provisions that are substantially different from the 1990 policies. All investigators proposing research involving human subjects should read the NIH Guidelines for Inclusion of Women and Minorities as Subjects in Clinical Research, which have been published in the Federal Register of March 28, 1994 (FR 59 14508-14513) and reprinted in the NIH Guide for Grants and Contracts, Volume 23, Number 11, March 18, 1994. Investigators also may obtain copies of the policy from the program staff listed under INQUIRIES. Program staff may also provide additional relevant information concerning the policy. APPLICATION PROCEDURES Applications are to be submitted on the grant application form PHS 398 (rev. 5/95) and will be accepted at the standard application deadline as indicated in the application kit. Application kits are available at most institutional offices of sponsored research and may be obtained from the Grants Information Office, Office of Extramural Outreach and Information Resources, National Institutes of Health, 6701 Rockledge Drive, MSC 7910, Bethesda, MD 20892, telephone (301) 710-0267, email: girg@drgpo.drg.nih.gov. The title and number of the program announcement must be typed in Section 2 on the face page of the application. Applications for the FIRST Award (R29) must include at least three sealed letters of reference attached to the face page of the original application. FIRST Award (R29) applications submitted without the required number of reference letters will be considered incomplete and will be returned without review. The completed original application and five legible copies must be sent or delivered to: DIVISION OF RESEARCH GRANTS NATIONAL INSTITUTES OF HEALTH 6701 ROCKLEDGE DRIVE, ROOM 1040 - MSC 7710 BETHESDA, MD 20892-7710 BETHESDA, MD 20817 (for express/courier service) REVIEW CONSIDERATIONS Applications will be evaluated for scientific and technical merit by an appropriate peer review group convened in accordance with NIH peer review procedures. As part of the initial merit review, all applications will receive a written critique and undergo a process in which only those applications deemed to have the highest scientific merit, generally the top half applications under review, will be discussed, assigned a priority score, and receive a second level review by the appropriate national advisory council or board. Review criteria are: scientific, technical, or medical significance and originality of proposed research; appropriateness and adequacy of the experimental approach and methodology proposed to carry out the research; qualifications and research experience of the Principal Investigator and staff, particularly, but not exclusively, in the area of the proposed research; availability of the resources necessary to perform the research; appropriateness of the proposed budget and duration in relation to the pro posed research; and adequacy of plans to include both genders and minorities and their subgroups as appropriate for the scientific goals of the research. Plans for the recruitment and retention of subjects will also be evaluated. AWARD CRITERIA Applications will compete for available funds with all other applications assigned to the NIDCD. The following will be considered in making funding decisions: quality of the proposed project as determined by peer review; availability of funds; and program priorities among research areas of the program announcement. INQUIRIES Written, telephone, and email inquiries concerning this PA are encouraged; the opportunity to clarify any issues or questions from potential applicants is welcome. Direct inquiries regarding scientific content to: Beth Ansel, Ph.D. Division of Human Communication National Institute on Deafness and Other Communication Disorders Executive Plaza South, Room 400-C 6120 Executive Boulevard, MSC 7180 BETHESDA, MD 20892-7180 Telephone: (301) 402-3461 FAX: (301) 402-6251 Email: Beth_Ansel@nih.gov. Direct inquiries regarding fiscal matters to: Sharon Hunt Grants Management Office National Institute on Deafness and Other Communication Disorders Executive Plaza South, Room 400-B 6120 Executive Boulevard, MSC 7180 BETHESDA, MD 20892-7180 Telephone: (301) 402-0909 FAX: (301) 402-1758 Email: Sharon_Hunt@nih.gov AUTHORITY AND REGULATIONS This program is described in the Catalog of Federal Domestic Assistance No. 93.173 Awards are made under authorization of the Public Health Service Act, Title IV, Part A (Public Law 78-410, as amended by Public Law 99-158, 42 USC 241 and 285) and administered under PHS grants policies and Federal Regulations 42 CFR 52 and 45 CFR Part 74. This program is not subject to the intergovernmental review requirements of Executive Order 12372 or Health Systems Agency review. The PHS strongly encourages all grant and contract recipients to provide a smoke-free workplace and promote the non-use of all tobacco products. In addition, Public Law 103-227, the Pro-Children Act of 1994, prohibits smoking in certain facilities (or in some cases, any portion of a facility) in which regular or routine education, library, day care, health care or early childhood development services are provided to children. This is consistent with the PHS mission to protect and advance the physical and mental health of the American people. .
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