Full Text PA-97-048 SELF-CARE BEHAVIORS AND AGING NIH GUIDE, Volume 26, Number 9, March 21, 1997 PA NUMBER: PA-97-048 P.T. 34 Keywords: Aging/Gerontology 0730052 Health Promotion National Institute on Aging National Institute of Nursing Research PURPOSE The National Institute on Aging (NIA) and National Institute of Nursing Research (NINR) invites qualified researchers to submit applications to investigate the nature, use, and outcomes of self- care activities. For the purposes of this Program Announcement, self-care is defined broadly. "Self-care" includes positive steps taken by individuals to either prevent disease or promote general health status through health promotion or lifestyle modification; medical self-care for the identification or treatment of minor symptoms of ill-health or the self-management of chronic health conditions; and steps taken by laypersons to compensate or adjust for functional limitations affecting routine activities of daily living. Research is encouraged on issues pertaining to the nature and extent of self-care practice by older adults; on stability and change of self-care behaviors over time; on the social, behavioral, and technological factors which facilitate or impede the development and maintenance of self-care; on the impact of self-care practice on health outcomes, including the potential for independent living and the relationship of self-care practice to the types and costs of formal health care utilization; and on the effectiveness of interventions to promote self-care, in response to acute conditions, and for the management of chronic illnesses and disabilities. HEALTHY PEOPLE 2000 The Public Health Service (PHS) is committed to achieving the health promotion and disease prevention objectives of "Healthy People 2000," a PHS-led national activity for setting priority areas. This program announcement, Self-Care Behaviors and Aging, is related to the priority area of age-related objectives for adults and older adults. Potential applicants may obtain a copy of "Healthy People 2000" (Full Report: Stock No. 017-001-00474-0) or "Healthy People 2000" (Summary Report: Stock No. 017-001-00473-1) through the Superintendent of Documents, Government Printing Office, Washington, DC 20402-9325 (telephone 202-783-3238). ELIGIBILITY REQUIREMENTS Applications may be submitted by domestic and foreign for-profit and non-profit organizations, public and private, such as universities, colleges, hospitals, laboratories, units of State and local governments, and eligible agencies of the Federal government. Applications may be submitted by single institutions or by a consortia of institutions. Women and minority investigators are encouraged to apply. Foreign institutions are not eligible for First Independent Research Support and Transition (FIRST) (R29) awards, but may submit applications for individual research project grants (R01). MECHANISM OF SUPPORT This program announcement will use the NIH investigator-initiated research project grant (R01) and FIRST (R29) award mechanisms. Research on self-care behaviors is one of the limited numbers of topics identified in the NIA small grant program. It is anticipated that the size of an award will vary due to the nature and scope of the proposed research, with the R01 award averaging $250,000 in total (direct plus indirect) costs per year. RESEARCH OBJECTIVES In 1983, the World Health Organization (WHO) defined self-care as referring to "activities individuals, families, and communities undertake with the intention of enhancing health, preventing disease, limiting illness, and restoring health. These activities are derived from knowledge and skills from the pool of both professional and lay experience. They are undertaken by lay people on their own behalf, either separately or in participative collaboration with professionals." Rather than being viewed as a failure of the individual to use medical services, self-care is seen as a continuum of self-initiated behaviors which may enhance the health and independent functioning of individuals as they age. The contemporary notion of aging and health is one in which the later years of life are significantly determined by patterns of living established in middle and younger adulthood. Thus, one of the goals of research on self-care is to relate specific health behaviors to important health outcomes, such as reduction in morbidity and mortality, and improvements in functional status. Other important goals include understanding the nature and extent of self-care in the general population, and identifying factors which activate the use of self-care practices. Finally, research must consider factors influencing changes in self-care patterns and practices throughout the adult years. A National Invitational Conference on Research Issues Related to Self-Care and Aging was convened in 1994 to conceptualize the scope of these issues and to begin to formulate research objectives. Experts attending this conference recommended that self-care behaviors be classified as one of three broad types, as follows. Healthy lifestyle behaviors intended to promote health and prevent disease. These practices include maintenance of good dietary and sleeping habits, avoidance of smoking and inactivity, promotion of environmental and home safety, and maintenance of good personal hygiene habits. The continuity of these lifestyle practices throughout adulthood defines one's overall health regimen and most likely has a bearing on the emergence of risk factors affecting later-life morbidity and mortality. Medical self-care behaviors that occur in association with symptoms and treatment. Included here are the phases of symptom detection and recognition, and self-initiated practices aimed at reducing discomfort and alleviating pain. Additional research is needed on the limits of self-care and when it may be harmful to substitute self-care for more formal health care. Behaviors engaged in to compensate for decrements in physical or cognitive function, or to adjust to limitations imposed by chronic illness. These purposive behaviors are intended to improve quality of life and are often targeted to basic activities of daily living and other instrumental activities. These efforts are adaptive responses to functional changes which are intended to prevent further disabling limitations. It may be important to further distinguish behaviors known as "self- care" from other behaviors. Research on "self-care" practices has a strong foundation in the study of volitional behavior. That is, the individual is presumed to have a deliberate and purposeful intention to act or to avoid acting in the practice of a self-care behavior. This characteristic of the behavior under investigation distinguishes "self-care" research from survey research which attempts to establish prevalence of behaviors regardless of intention. An individual may, for example, engage in particular eating or sleeping behaviors without regard for their health outcomes. Thus, prevalence research on a self-care practice is not necessarily the same as behavioral epidemiologic surveys to establish population prevalence (regardless of intention behind the behavior). Applications appropriate to this PA are not restricted to any specific discipline, but should be focused on well-articulated theoretical approaches and methodologies in aging to elucidate issues specifically related to self-care behaviors. Research is encouraged that specifies conceptual approaches within aging research and would give the field a strong base of scientific methodologies and data. Researchers are urged to design innovative strategies for this emerging area of study that may include qualitative approaches, use of available data sets, or targeted survey strategies. Of particular value would be studies comparing older age groups because self-care may vary with the age and aging-related circumstances of the older individual. When supported by empirical data from prior research, applications that include theory-based intervention projects may be submitted. The following are offered as illustrations of appropriate topics for research. Applications need not, however, be limited to these issues. Accepted referral guidelines will be followed in assigning applications to NIA, NINR, or to other Institutes. o Nature and Extent of Self-Care Practices by Older Adults Does the range of self-care practices vary by age, gender, education, minority status or the degree to which priorities are socially or culturally embedded? Are there secular changes which may have a bearing on the healthy lifestyle and self-care practices of different cohorts as they age? What are the intra-individual patterns of self-care practice? For example, are individuals who respond effectively to minor symptom detection the same people who use effective coping strategies in response to major life threats? Are these patterns of self-care stable over the life course? How are decisions regarding self-care made? Are decisions to engage in self-care automatic or reactive, or is there an elaborate decision making process through which information is sorted while actions are planned accordingly? o Factors which Facilitate or Impede the Development and Maintenance of Self-Care Along with gender, educational level, and marital status, what other psychosocial variables affect how people view self-care and whether they are disposed to engage in it? For example, when are personality and attitudes, degree of lay medical knowledge, or history of management of illness predictive of self-care as people age? How does readiness and acceptance of self-care vary by cultural, racial, and other demographic variables? And when do contextual factors, such as availability of social supports or presence of life stresses, become important determinants of the activation and maintenance of self-care behaviors? What are the sources of information about self-care practices and how do these vary by the nature of the symptoms/illness or characteristics of the user? Are there differential factors affecting the initiation of self-care behaviors as compared to the long-term maintenance of such behaviors? o Impact of Self-Care Practice on Health Outcomes What is the relationship of self-care to other aspects of health behavior and attitudes? How does the relationship of self-care at different points in the life course affect short- and long-term health outcomes? Can it be determined which elements of self-care regimens are effective, and which might have unexpected or harmful effects for specific disease/conditions as well as for general health and well being? When is reliance on self-care harmful? Under what conditions are illness symptoms likely to be misinterpreted and potentially life- threatening practices engaged in? o Interventions to Promote Self-Care How can interventions be designed to match individuals readiness to adopt a new strategy (e.g., precontemplation, contemplation, preparation) and/or the nature of their symptoms or condition? How can intervention efforts be most effectively targeted? How do psychosocial, demographic, and cultural factors determine the most effective intervention strategy to affect self-care practices? What is the role of organizations in the effective communication of self-care information to older people and their families? o Relationship of Self-Care Practice to Formal Health Care Utilization What is the role of medical, nursing, and other professionals in the initiation and maintenance of self-care behaviors? Does the effectiveness of professionals depend upon whether the purpose of self-care is to maintain health, respond to acute symptoms, or manage chronic illness? Are there some conditions or situations in which older people rely more on medical knowledge versus lay knowledge in determining the appropriate response to symptoms? o Methodological and Conceptual Issues How can self-care indices such as delay in use of self-care or appropriateness of care-seeking behavior be best conceptualized and modeled? How are self-care practices measured? Are these methods valid and reliable? Can hypothesized causal relationships between self-care activities and health outcomes be tested using multivariate and multilevel statistical models and techniques? How can data from large national longitudinal databases be used to address issues relating to self-care practices, health, and aging? INCLUSION OF WOMEN AND MINORITIES IN RESEARCH INVOLVING HUMAN SUBJECTS It is the policy of the NIH that women and members of minority groups and their sub-populations must be included in all NIH supported biomedical and behavioral research projects involving human subjects, unless a clear and compelling rationale and justification is provided that inclusion is inappropriate with respect to the health of the subjects or the purpose of the research. This policy results from the NIH Revitalization Act of 1993 (Section 492B of Public Law 103-43). All investigators proposing research involving human subjects should read the "NIH Guidelines for Inclusion of Women and Minorities as Subjects in Clinical Research," which have been published in the Federal Register of March 28, 1994 (FR 59 14508-14512), and in the NIH Guide for Grants and Contracts, Volume 23, Number 11, March 18, 1994. APPLICATION PROCEDURES Applications are to be submitted on the grant application form PHS 398 (rev. 5/95) and will be accepted at the standard application deadlines as indicated in the application kit. Applications kits are available at most institutional offices of sponsored research and may be obtained from the Division of Extramural Outreach and Information Resources, National Institutes of Health, 6701 Rockledge Drive, MSC 7910, Bethesda, MD 20892-7910, telephone 301/710-0267, email: [email protected]. The number and title of this program announcement must be typed in Section 2 on the face page of the application. Applications for the FIRST (R29) award must include at least three sealed letters of reference attached to the face page of the original application. FIRST (R29) award applications submitted without the required number of reference letters will be considered incomplete and will be returned without review. The complete original and five permanent, legible copies must be sent or delivered to: DIVISION OF RESEARCH GRANTS NATIONAL INSTITUTES OF HEALTH 6701 ROCKLEDGE DRIVE, ROOM 1040 - MSC 7710 BETHESDA, MD 20892-7710 BETHESDA, MD 20817-7710 (for express/courier service) REVIEW CONSIDERATIONS Applications received under this program announcement will be assigned to an appropriate Initial Review Group (IRG) in accordance with established NIH Referral Guidelines. The IRG, consisting primarily of non-Federal scientific and technical experts, will review the applications for scientific and technical merit in accordance with standard NIH review procedures. As part of the initial merit review, a process may be used by the initial review groups in which applications will be determined to be competitive or non-competitive based on their scientific merit. Applications judged to be competitive will be discussed and be assigned a priority score. Applications determined non-competitive will be withdrawn from further consideration and the Principal Investigator and the official signing for the applicant organization will be notified. Notification of the review recommendations will be sent to the applicant after the initial review. Applications recommended for further consideration and receiving sufficiently high priority will receive a second-level review by an appropriate National Advisory Council, whose review may be based on policy considerations as well as scientific merit. Applications that deal primarily with health services research, especially in the context of primary care and managed care systems, may be referred to the Agency for Health Care Policy and Research (AHCPR) for possible funding or co-funding. The requirements of AHCPR are similar to those of NIH, except applicants must be non- profit institutions. AWARD CRITERIA Applications recommended by a National Advisory Council will be considered for funding on the basis of overall scientific and technical merit of the research as determined by peer review, program needs and balance, and availability of funds. INQUIRIES Inquiries are encouraged. The opportunity to clarify any issues or questions from potential applicants is welcome. Further information about NIA priorities and procedures can be found on the NIA Home Page http://www.nih.gov/nia Direct inquiries regarding programmatic issues to: Dr. Marcia G. Ory Behavioral and Social Research Program National Institute on Aging Gateway Building, Room 533 7201 Wisconsin Avenue MSC 9025 Bethesda, MD 20892-9205 Telephone: 301-402-4156 FAX: 301-402-0051 Email: [email protected] Dr. Lynn M. Amende Director, Division of Extramural Activities National Institute of Nursing Research Building 45, Room 3AN12 Bethesda, MD 20892-6300 Tel: 301-594-6906 Fax: 301-480-8260 Email: [email protected] Email contact preferred Direct inquiries regarding fiscal matters to: Ms. Crystal Ferguson Grants Specialist Grants Management Office National Institute on Aging Gateway Building, Room 2N212 Bethesda, MD 20892 Tel: 301-496-1472 FAX: 301-402-3672 Email: [email protected] Mr. Jeff Carow Grants Management Officer National Institute of Nursing Research Building 45, Room 3AN12 Bethesda, MD 20892-6301 Tel: 301-594-6869 Fax: 301-480-8260 Email: [email protected] Direct inquiries regarding AHCPR programmatic issues to Ms. Linda Siegenthaler, MA, Senior Economist, Center for Primary Care Research, AHCPR, email: [email protected] AUTHORITY AND REGULATIONS This program is described in the Catalog of Federal Domestic Assistance No. 93.866. Awards are made under authorization of the Public Health Service Act, Title IV, Part A (Public Law 78-410, as amended by Public Law 99-158, 42 USC 241 and 285) and administered under PHS grants policies and Federal Regulations 42 CFR 52 and 45 CFR Part 74. This program is not subject to the intergovernmental review requirements of Executive Order 12372 or Health Systems Agency review. The PHS strongly encourages all grant and contract recipients to provide a smoke-free workplace and promote the non-use of all tobacco products. In addition, Public Law 103-227, the Pro-Children Act of 1994, prohibits smoking in certain facilities (or in some cases, any portion of a facility) in which regular or routine education, library, day care, health care or early childhood development services are provided to children. This is consistent with the PHS mission to protect and advance the physical and mental health of the American people. .
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