Notice Number: NOT-OD-08-042

Key Dates
Release Date:  February 21, 2008

Issued by
Office of Rare Diseases (ORD) (http://rarediseases.info.nih.gov/)

The Office of Rare Diseases, National Institutes of Health, will host a public pre-application meeting for investigators planning to submit applications in response to the Request for Applications (RFA) OD-08-001, entitled "Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)” (http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-001.html) or RFA OD-08-002, entitled Data Management and Coordinating Center (DMCC) for Rare Diseases Clinical Research Network (U54) " (http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-002.html ).  The Rare Diseases Clinical Research Network program will facilitate identification of biomarkers for disease risk, disease severity/activity, and measures of clinical outcomes appropriate for applicability to clinical trialsand encourage development of new approaches to diagnosis, prevention, and treatment of rare diseases.

The purpose of this meeting is to provide prospective applicants with an overview presentation on the above mentioned RDCRN RFAs followed by an exchange of questions and answers pertinent to preparing applications in response to these RFAs with representatives of the Office of Rare Diseases and participating NIH Institutes and Centers (IC).   This opportunity is not intended to replace more detailed discussions that applicants may wish to have with the IC program staff.  Questions prior to the meeting are invited and can be submitted at [email protected]. This meeting will be held on Monday, March 17th from 1:00 pm – 3:00 pm EST, at the Neuroscience Building, Conference Room C, 6001 Executive Boulevard, Rockville, MD 20852.  VideoCast proceedings of this meeting will be available live with closed captioning, and thereafter by archive at http://videocast.nih.gov/. 

Participation in the meeting, although encouraged, is optional and not required for application submission.  There is no registration or fee requirement for this public pre-application meeting, but the space is limited. We encourage investigators who may attend the meeting in person to provide us in advance (preferably by email) with their names and other appropriate contact information including their current e-mail address.   

Inquiries

Direct inquiries regarding this notice to:

Rashmi Gopal-Srivastava, Ph.D.
Office of Rare Diseases
National Institutes of Health
6100 Executive Blvd., Suite 3B01, MSC 7518
Bethesda, MD 20892-7518
Phone: 301 402 4336; Fax 301 480 9655
Email: [email protected]

Or

David J. Eckstein, Ph.D.
Office of Rare Diseases
National Institutes of Health
6100 Executive Blvd., Suite 3B01, MSC 7518
Bethesda, MD 20892-7518
Phone: 301 402 4336; Fax 301 480 9655
Email: [email protected]