Notice of Intent to Publish a Funding Opportunity Announcement for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Data Management and Coordinating Center (DMCC) (U01)

Notice Number: NOT-NS-17-004

Key Dates
Release Date: October 21, 2016

Estimated Publication Date of Announcement: December 2016
First Estimated Application Due Date: April 2017
Earliest Estimated Award Date: September 2017
Earliest Estimated Start Date: September 2017

Related Announcements

Issued by
National Institute of Neurological Disorders and Stroke (NINDS)


The National Institute of Neurological Disorders and Stroke (NINDS), along with other NIH Institutes and Centers (ICs), intends to promote a new initiative by publishing a Funding Opportunity Announcement (FOA) to solicit applications for a Data Management and Coordinating Center (DMCC) to facilitate and coordinate research in the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Collaborative Research Centers (ME/CFS CRC).

The overarching goal of this initiative will be to establish a data management and coordinating center that will support the work of a network of ME/CFS CRCs that will work independently and collaboratively to define the causes of and discover improved treatments for ME/CFS and will coordinate their activities through the DMCC.

This Notice is being provided to allow potential applicants sufficient time to develop meaningful collaborations and responsive projects.

The FOA is expected to be published in December 2016 with an expected application due date in April 2017. The NIH anticipates holding a pre-application web-based teleconference to which all interested prospective applicants are invited. Information about this pre-application web-based teleconference call will be available in the FOA.

This FOA will utilize the U01 activity code. Details of the planned FOA are provided below.

Research Initiative Details

This Notice encourages investigators with expertise and insights into this area of data management and coordination to begin to consider applying for this new FOA.

Clinical and basic data management for efficient data collection as well as data mining and data sharing will be addressed through this FOA for the Data Management and Coordinating Center (DMCC) component to support the ME/CFS CRCs. This DMCC will support collaborative research teams in the ME/CFS CRCs to manage and coordinate their research and data collection in the Data Management and Coordinating Center.

Applicants are encouraged, but not required to use a multiple program director/principal investigator (PD/PI) mechanism to facilitate collaborations. Multidisciplinary teams and diverse areas of expertise may be represented. Foreign components are allowed, but applications from foreign institutions will not be accepted.



Please direct all inquiries to:

Vicky Whittemore, PhD
National Institute of Neurological Disorders and Stroke (NINDS)
Telephone: 301-496-1917