August 29, 2022
None
National Institute on Aging (NIA)
The purpose of this Request for Information (RFI) is to invite comments and suggestions to inform planning of the third National Research Summit on Care, Services, and Supports for Persons Living with Dementia and their Caregivers/Care Partners (Care Summit), scheduled for Monday, March 20 to Wednesday, March 22, 2023. The National Institute on Aging (NIA) seeks input on topics of consideration from interested stakeholders, including persons living with dementia, caregivers and care partners, dementia care providers, members of the scientific community, academic institutions, the private sector, health professionals, professional societies, advocacy groups, patient communities, as well as other interested members of the public.
The purpose of the third Care Summit is to review research progress, highlight innovative and promising research, and identify remaining unmet research needs with input from the research community, persons living with dementia (PLWD) and their care partners, those who provide healthcare or services and supports to persons living with dementia, and other stakeholders.
Background
The goal of the Care Summit is to bring together individuals with a variety of backgrounds to identify evidence-based programs, strategies, approaches, and other research that can be used to improve the care, services, and supports of persons with dementia and their caregivers. The first Care Summit was held in October 2017. The second Care Summit took place in the summer of 2020. In addition to the Care Summits, NIA organizes the National Institutes of Health’s (NIH) Alzheimer's Research Summits. Relatedly, the National Institute of Neurological Disorders and Stroke (NINDS), another one of NIH’s institutes, organizes the Alzheimer’s Disease-Related Dementias (ADRD) Summits. The intent of each summit is to assess research gaps and opportunities that reflect critical scientific priorities for research on Alzheimer’s disease (AD) and ADRD. The summits are all a part of NIH's coordinated planning efforts to respond to the National Plan to Address Alzheimer's Disease, first released in 2012 and updated annually.
Following each AD/ADRD summit, AD/ADRD Research Implementation Milestones may be created to address the national plan. Accompanying each milestone is a progress summary that may be helpful in identifying remaining areas of unmet needs. Following the second Care Summit, five care-related milestones were developed, specifically, milestones 13.N, 13.O, 13.P, 13.Q, and 13.R. In addition to being added to the comprehensive AD/ADRD milestone database, the newly developed care-related milestones were added to a list of care-related AD/ADRD Research Implementation Milestones.
Information Requested
NIA invites comments on notable care research progress made, new and innovative research being undertaken, and remaining unmet research needs. NIA also invites comments and suggestions on key programmatic areas of possible interest at the 2023 Care Summit. Comments may address, but are not limited to, one or more of the following bulleted topics:
- Measuring outcomes that matter to PLWD and their care partners
- The impact of detection and diagnosis on individuals and care partners, as well as social, economic, and structural barriers to, and facilitators of, detection and diagnosis and ethics and equity issues
- Disparities and inequities in healthcare access, utilization, and quality for PLWD
- Approaches to participatory research and recruitment and retention of stakeholders and research participants from heterogeneous backgrounds
- Dementia care models, coordination of care, and transitions across a care continuum
- Interventions to support dementia care partners and caregivers, including interventions tailored to address differences in caregiving needs, supports, and sources of resilience that may exist across various cultures
- Applying behavioral economics approaches, including behavioral nudges, to dementia care and caregiving interventions
- The paid dementia care workforce, including the nursing home and community-based care workforce
- The financial costs of dementia care to PLWD, care partners, families, health systems, payers, and others
- The economic impact of innovations in care and treatment
How to Submit a Response
Responses to this RFI should be submitted using the response form located here. To ensure consideration, responses must be submitted by October 21, 2022.
Response to this RFI is voluntary. Responders are free to address any or all the topics listed above and/or to provide feedback on any relevant issues. The submitted information will be reviewed by NIH staff.
This request is for information and planning purposes only and should not be construed as a solicitation or as an obligation on the part of the Federal Government. The NIH does not intend to make any awards based on responses to this RFI or to otherwise pay for the preparation of any information submitted or for the Government's use of such information.
The NIH will use the information submitted in response to this RFI at its discretion and will not provide comments to any responder's submission. The information provided will be analyzed and may be aggregated in presentations and reports. Respondents are advised that the Government is under no obligation to acknowledge receipt of the information received or provide feedback to respondents with respect to any information submitted. No proprietary, classified, confidential, or sensitive information should be included in your response. The Government reserves the right to use any non-proprietary technical information in any resultant solicitation(s).
Chandra Keller
National Institute on Aging
Division of Behavioral and Social Research
Telephone: 301-496-3137
Email: [email protected]
and Human Services (HHS)
