June 26, 2020
National Institute on Aging (NIA)
The National Institute on Aging (NIA), in conjunction with the Department of Health and Human Services as part of the National Alzheimer’s Project Act (NAPA), planned to host the second National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers on March 24-25, 2020. The in-person event was canceled per COVID-19 physical distancing guidance. In lieu of the in-person event, the NIA is hosting a 2020 Dementia Care, Caregiving, and Services Research Summit Virtual Meeting Series in Summer 2020. This series will include research presentations, panelist remarks, moderated discussion (with live Q&A), and a presentation on the draft research gaps and opportunities. These draft gaps and opportunities, developed by the Summit Steering Committee with input from stakeholder groups and organized into six themes, are intended to identify important potential areas for future research in the fields of dementia care and caregiving.
This Request for Information (RFI) invites comments on the draft research gaps and opportunities, now posted here: https://nia.nih.gov/research/summit-gaps-opportunities.
This RFI seeks input from a broad range of stakeholders – people living with dementia, caregivers, researchers, care providers, and advocacy communities – in the fields of dementia care, services, and supports, as well as other interested members of the public. All input will be considered and discussed by the Summit Steering Committee and NIA staff before finalizing the 2020 Summit research gaps and opportunities.
The first National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers was held on the National Institutes of Health (NIH) campus on October 16-17, 2017. This summit followed the example of previous Alzheimer’s disease and Alzheimer's disease-related dementias summits (organized by the NIA and the National Institute of Neurological Disorders and Stroke (NINDS), respectively). These conferences are part of coordinated planning efforts in response to the National Plan to Address Alzheimer's Disease, first released in 2012 and now updated annually. The intent of each of these summits is to produce ideas for important future areas that reflect critical scientific priorities for research on Alzheimer’s disease and Alzheimer’s disease-related dementias.
The 2017 Dementia Care and Services Summit Report summarizes the structure of the 2017 Summit and the research recommendations generated from these activities. The 2020 Dementia Care, Caregiving, and Services Research Summit Virtual Meeting Series aims to expand upon what was learned in the previous summit and spark new, innovative ideas informed by a broad range of stakeholders.
The 2020 Summit Steering Committee has developed a set of draft research gaps and opportunities, which will be discussed during the Virtual Summit Meeting Series.
We are seeking feedback on these draft research gaps and opportunities; more specifically, we are requesting the following types of input:
We also welcome questions to spur discussion at the Virtual Summit Meeting Series events. Please note: Thoughall submitted questions will be reviewed, not all questions can be addressed live during the virtual meetings because of time constraints.
All comments and questions received through this RFI will inform the discussion to finalize the research gaps and opportunities.
How to Submit a Response
We ask that all responses to this RFI be submitted at https://www.nia.nih.gov/2020-dementia-care-summit#RFI
When submitting feedback, please indicate the theme and specific draft gap and opportunity most relevant to your input.
If you are unable to access the feedback form, you may submit responses to this RFI via phone at 1-800-438-4380.
Responses must be received by August 20, 2020.
Responses to this RFI are voluntary. Do not include any proprietary, classified, confidential, trade secret, or sensitive information in your response. The responses will be reviewed by summit planners, and individual feedback will not be provided to any respondent. The Government will use the information submitted in response to this RFI at its discretion. The Government reserves the right to use any submitted information on public NIH websites; in reports; in summaries of the state of the science; in any possible resultant solicitation(s), grant(s), or cooperative agreement(s); or in the development of future funding opportunity announcements. The responses will not be shared publicly.
This RFI is for information and planning purposes only and shall not be construed as a solicitation, grant, or cooperative agreement, or as an obligation on the part of the Federal Government, the NIH, or individual NIH Institutes and Centers to provide support for any ideas identified in response to it. The Government will not pay for the preparation of any information submitted or for the Government’s use of such information. No basis for claims against the U.S. Government shall arise as a result of a response to this request for information or from the Government’s use of such information.
NIH looks forward to your input, and we hope that you will share this RFI with your colleagues.
Please submit your response to this RFI at https://www.nia.nih.gov/2020-dementia-care-summit#RFI
Please direct inquiries about this RFI to DementiaCareSummit2020@nih.gov.