Invitation for Input on the 2020 National Research Summit on Care, Services, & Supports for Persons with Dementia and their Caregivers

Notice Number: NOT-AG-19-016

Key Dates
Release Date: April 15, 2019
Response Date: June 28, 2019

Related Announcements

Issued by
National Institute on Aging (NIA)


The purpose of this Request for Information (RFI) is to invite comments and suggestions for the second National Research Summit on Care, Services, & Supports for Persons with Dementia and their Caregivers, set to occur on March 24 & 25, 2020. The National Institute on Aging (NIA), in conjunction with the Department of Health and Human Services as part of the National Alzheimer’s Project Act (NAPA), seeks input on topics of consideration from its stakeholders, including persons living with dementia, caregivers, members of the scientific community, academic institutions, the private sector, health professionals, professional societies, advocacy groups, patient communities, as well as other interested members of the public. All input will be considered in the development of the agenda for this Summit.


The first National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers was held on the National Institutes of Health (NIH) campus on October 16-17, 2017. This summit followed the example of previous Alzheimer’s Disease and Alzheimer's Disease Related Dementias Summits (organized by the NIA and the National Institute of Neurological Disorders and Stroke (NINDS), respectively). These conferences are all a part of the coordinated planning efforts that respond to the National Plan to Address Alzheimer's Disease, first released in 2012 and now updated annually. The intent of each of these summits is to produce research recommendations that reflect critical scientific priorities for research on Alzheimer’s disease and related dementias.

The 2017 Dementia Care & Services Summit Report summarizes the structure of the 2017 Summit and the research recommendations generated from these activities. The 2020 Dementia Care & Services Summit aims to expand upon what was learned in the previous summit and spark new innovative ideas in the fields of care, services, and supports.

Information Requested

We are requesting input through this RFI from all stakeholders in the previous summit and individuals/organizations that may be newly interested in this topic; this input will contribute to the development of an agenda and organization of the 2020 Summit.

The primary goals of the meeting include:

  1. Sharing scientific findings across dementia caregiving and dementia care intervention research
  2. Sharing research findings on the improved characterization of PWD (Persons living with dementia), Caregivers, and health & social service systems
  3. Conveying progress made since the 2017 Care & Services Summit
  4. Providing opportunities for stakeholders to discuss dementia care and dementia caregiving research needs and the experience of seeking care
  5. Addressing participation of PWD and caregivers in research
  6. Addressing how scientists can improve intervention research
  7. Addressing the experience of dementia across and between care settings
  8. Highlighting critical future scientific areas of inquiry, including infrastructure and data needs

In addition to comment on the above outlined goals, this RFI invites input on key programmatic areas and/or issues to address in the 2020 Summit.

How to Submit a Response

Responses to this RFI must be submitted electronically at:

Responses must be received by June 28, 2019.

Responses to this RFI are voluntary. Do not include any proprietary, classified, confidential, trade secret, or sensitive information in your response.The responses will be reviewed by Summit planners, and individual feedback will not be provided to any responder. The Government will use the information submitted in response to this RFI at its discretion. The Government reserves the right to use any submitted information on public NIH websites, in reports, in summaries of the state of the science, in any possible resultant solicitation(s), grant(s), or cooperative agreement(s), or in the development of future funding opportunity announcements.

This RFI is for information and planning purposes only and shall not be construed as a solicitation, grant, or cooperative agreement, or as an obligation on the part of the Federal Government, the NIH, or individual NIH Institutes and Centers to provide support for any ideas identified in response to it. The Government will not pay for the preparation of any information submitted or for the Government’s use of such information. No basis for claims against the U.S. Government shall arise as a result of a response to this request for information or from the Government’s use of such information.

NIH looks forward to your input and we hope that you will share this RFI document with your colleagues.


Please direct all inquiries to:

Office of Legislation, Policy, and International Activities
National Institute on Aging (NIA)