Interactive Presentation Outline
Presentation Title:
Proposed NIH Policy for Data Sharing of NIH Supported Genome-Wide Association Studies
NIH Town Hall Meeting Introduction
(00:00:00)
Presentation Title:
Proposed NIH Policy for Data Sharing of NIH Supported Genome-Wide Association Studies
Proposed NIH Policy for Data Sharing of NIH Supported Genome-Wide Association Studies (GWAS)
(00:07:24)
Slide 1:
What are GWAS?
(00:07:25)
Slide 2:
Genome Wide Association Studies
(00:08:14)
Slide 3:
Value of Data Sharing
(00:09:01)
Slide 4:
Benefits of the GWAS Data Repository
(00:10:08)
Slide 5:
Realizing “Public Health” Benefits: Hypertension
(00:16:40)
Slide 6:
Realizing “Public Health” Benefits: Type 2 Diabetes
(00:17:50)
Slide 7:
Realizing “Public Health” Benefits: Age-Related Macular Degeneration
(00:19:50)
Slide 8:
Clinical Research Participation
(00:20:50)
Slide 9:
Core Elements of the Proposed Policy
(00:21:42)
Slide 10:
GWAS Data Management Overview
(00:22:27)
Slide 11:
Data Submission
(00:23:44)
Slide 12:
GWAS Data Management Overview
(00:25:27)
Slide 13:
Data Access
(00:25:47)
Slide 14:
Protecting Research Participants
(00:27:40)
Slide 15:
Publication
(00:29:27)
Slide 16:
Intellectual Property
(00:30:50)
Slide 17:
Timeline for Proposed GWAS Policy
(00:32:25)
Slide 18:
Google GWAS Policy
(00:33:20)
Slide 19:
Questions for Public Consultation
(00:33:44)
Slide 20:
GWAS Number of Public Comments Received August 30 - Number 30, 2006
(00:34:20)
Slide 21:
Issues Raised in Public Comments
(00:34:44)
Slide 22:
Closing Benefits of the GWAS Data Repository
(00:35:05)
Presentation Title:
dbGaP: Example of a Genotype-Phenotype Database
dbGaP: Example of a Genotype-Phenotype Database
(00:36:05)
Slide 1:
Clinical Studies Have Been Unique
(00:36:28)
Slide 2:
Whole Genome Association Finds Genes Involved in Disease
(00:37:47)
Slide 3:
dbGaP
(00:40:18)
Slide 4:
Study Summary
(00:40:54)
Slide 5:
dbGaP Documents
(00:41:05)
Slide 6:
Study Documents Example
(00:42:07)
Slide 7:
Study Documents Example cont.
(00:43:07)
Slide 8:
Association/Analysis Pages
(00:43:43)
Slide 9:
Associations Close Up
(00:45:01)
Slide 10:
Associations to the Basepair
(00:45:53)
Slide 11:
Closing the Loop
(00:46:17)
Presentation Title:
Panel One Data Management, Research Participant Protections
Panel One Data Management, Research Participant Protections
(00:52:06)
Slide 1:
Panel One: Public Comments: Research Participant Protections/Informed Consent
(00:52:40)
Slide 2:
Panel One: Public Comments: Data Management/Data Access
(00:55:20)
Slide 3:
Panel One Question & Answer Period
(00:56:36)
Presentation Title:
Panel Two Scientific Publication/Intellectual Property
Panel Two Scientific Publication/Intellectual Property
(01:46:35)
Slide 1:
Public Comments: Scientific Publications
(01:46:58)
Slide 2:
Public Comments: Intellectual Property
(01:51:40)
Slide 3:
Panel Two Question & Answer Period
(01:53:40)
Presentation Title:
Dr. Elizabeth Nabel Closing Remarks
Dr. Elizabeth Nabel Closing Remarks
(02:16:45)