Notice Number: NOT-OD-15-110

Key Dates
Release Date: June 8, 2015

Related Announcements
NOT-OD-15-107

Issued by
National Institutes of Health (NIH)

Purpose

On July 1-2, 2015, the Precision Medicine Initiative (PMI) Working Group of the Advisory Committee to the NIH Director (ACD) will hold the Participant Engagement and Health Equity Workshop focusing on key strategies and methodological considerations needed to engage diverse participants and communities in novel ways in the national research cohort of one million or more Americans proposed under President Obama’s Precision Medicine Initiative. The workshop will be held at the National Institutes of Health (NIH) in Bethesda, Maryland. It is open to the public via registration and may also be viewed live via videocast.

The agenda for the July workshop includes panel discussions focused on the key design features, governance, policy, and implementation strategies needed for an engaged national research cohort. Some cross-cutting themes throughout the workshop are inclusion strategies that address health disparities and health equity, successful methods of sustainable trust and engagement, and the building of cohort identity.

Background

On January 30, 2015, President Obama launched the PMI to accelerate our understanding of individual variability and its effect on disease onset, progression, prevention, and treatment. To help articulate the vision for building the cohort, the NIH Director formed the ACD PMI Working Group, which is hosting this and other workshops to gather input from stakeholders on topics integral to implementing the PMI. Please consult the NIH PMI website for further information about our PMI efforts, the ACD PMI Working Group, and NIH PMI events.

Registration and Materials

Links to registration and preliminary materials for this event may be accessed at the Participant Engagement and Health Equity Workshop website. Registrants may attend the workshop in person at the John Porter Neuroscience Building at the NIH in Bethesda, Maryland, from 8:00 am to 5:30 pm on July 1 and from 8:00 am to 12:30 pm on July 2. No registration is required to view the event live via videocast.

The extramural community is also encouraged to respond to a recently issued Request for Information: NIH Precision Medicine Cohort - Strategies to Address Community Engagement and Health Disparities (NOT-OD-15-107), which is accepting comments through its webform until June 19, 2015.

Inquiries

Please direct all inquiries about the workshop to NIH Precision Medicine: precisionmedicine@nih.gov