Sharing Data via the Federal Interagency Traumatic Brain Injury Research (FITBIR) Informatics System


Notice Number:  NOT-NS-12-016

Update: The following update relating to this announcement has been issued:

  • March 27, 2014 - See Notice NOT-NS-14-022. Notice of Modification of the Data Sharing Policy for the Federal Interagency Traumatic Brain Injury Research (FITBIR) Informatics System.
  • March 21, 2013 - See Notice NOT-NS-13-018. Notice of Modification of the Data Sharing Policy for the Federal Interagency Traumatic Brain Injury Research (FITBIR) Informatics System.
Key Dates

Release Date:  June 4, 2012  

Issued by

National Institute of Neurological Disorders and Stroke (NINDS)

Purpose

To further accelerate the pace of discovery and advance research, the National Institutes of Health (NIH) and the Department of Defense (DoD) are collaborating to develop the Federal Interagency Traumatic Brain Injury Research (FITBIR) Informatics System.  The FITBIR Informatics System will provide the traumatic brain injury (TBI) research community with a common platform for exchanging data, protocols, and research-related information.  Moreover, the architecture of FITBIR supports federation with other data resources. FITBIR will begin accepting clinical data on July 16, 2012 for a variety of phenotypic assessments, including image and genomic data, in a variety of formats (for details, see FITBIR, Contributing Data). 

TBI researchers who are collecting clinical phenotypic, genomic or imaging data are expected to share their data via FITBIR, and to use this national resource to advance their projects.  This is expected of all investigators regardless of the size of the budget of their research projects, regardless of the source of support for their TBI research, including investigators supported by NIH grants awarded under focused funding opportunity announcements (FOAs) or those under parent mechanism FOAs (“unsolicited” applications). TBI researchers supported by non-federal sources are also encouraged to utilize the FITBIR Informatics System. 

Inquiries

Inquiries regarding this notice may be directed to:

FITBIR Operations Team
Email: FITBIR-ops@mail.nih.gov

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