Key Dates
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National Human Genome Research Institute (NHGRI)
The National Human Genome Research Institute (NHGR) intends to promote a new initiative by publishing a Notice of Funding Opportunity (NOFO) to advance scholarship on the ethical, legal, and social implications (ELSI) of advances in human genetics or genomics, enhance ELSI research teams, build ELSI research capacity, and broaden the ELSI workforce.The intended NOFO will be based on a concept recently approved by the National Advisory Council on Human Genome Research and accompanying discussion.
This Notice is being provided to allow potential applicants sufficient time to develop meaningful collaborations and responsive projects, and to consult with NIH following release of the intended NOFO to submit responsive applications.
The NOFO is expected to be published in summer of 2004 with an expected application due date in fall of 2024.
This NOFO will utilize the UM1 activity code (Research Project with Complex Structure, Cooperative Agreement, Clinical Trial Optional). Details of the planned NOFO are provided below.
The goal of new NOFO is to broaden the types of knowledge, skills, expertise, experience, and perspectives brought to bear in research addressing the ethical, legal and social implications (ELSI) of advances in human genetics or genomics. NHGRI's ELSI Research Program seeks to advance ELSI scholarship, increase community involvement on ELSI research teams, and build capacity for ELSI research at organizations that are underrepresented in the field.
Specifically, the intended NOFO will support the following four required components:
- Transdisciplinary ELSI research projects addressing timely, complex, and understudied topics associated with advances in human genetics and genomics.
- Establishment of research teams that include representatives from relevant communities who are affected by and have an interest in proposed research topics (referred to below as “relevant communities”).
- ELSI research capacity building to develop or enhance research readiness, research sustainability, and/or research partnerships.
- Workforce development opportunities in ELSI research for undergraduates, post-baccalaureates, graduate students, postdoctoral trainees, and junior faculty; research teams; and research project staff.
Transdisciplinary ELSI research projects require involvement from two or more fields of knowledge and use of multiple research approaches. Relevant communities must be actively and meaningfully engaged on ELSI research teams across all phases of proposed research projects. Research topics may address one or more of the following themes:
- Genomics in Context. Addresses the roles, strengths, and limitations of genetics and genomics in understanding and improving human health, behavior, disease, and other variable traits.
- Equity and Justice in Genomics. Addresses efforts to define and help achieve equity in genomics for individuals, groups, communities, or populations.
- Genomics and Identity. Addresses how genetics and genomics impact conceptions of individual, group, or population identities; and how conceived identities may impact perceptions people have of, or experiences people have with, genomic information and technologies.
- Genomic Landscape. Addresses the use and direction of genetics and genomics by a broad range of entities whose mission, scope, and impact go beyond health (e.g., direct to-consumer testing companies, education system, and national security).
Given the complex structure of the intended NOFO, a comprehensive management plan is required to ensure successful completion of the program.
Under the UM1 activity code, grantees funded through the intended NOFO will engage in post-award collaboration with other grantees. Collaboration efforts may include, but are not limited to, recurring meetings to discuss progress, outcomes, lessons learned, sustainability, and other pertinent topics.
This Notice encourages inquiries and applications from eligible applicants to include domestic organizations located in the United States and its territories that received less than $30 million per year in total NIH funding for the past three completed fiscal years.
Funding Information
NHGRI intends to commit up to an estimated total of $2.6 million in direct costs in FY 2025.
Up to four
N/A
TBD
Private Institution of Higher Education
Nonprofit with 501(c)(3) IRS Status (Other than Institution of Higher Education)
Indian/Native American Tribal Government (Federally Recognized)
Indian/Native American Tribally Designated Organization (Native American tribal organizations (other than Federally recognized tribal governments)
U.S. Territory or Possession
Indian/Native American Tribal Government (Other than Federally Recognized)
Regional Organization
Applications are not being solicited at this time.
Inquiries
Please direct all inquiries to:
Rene Sterling, Ph.D., M.H.A.
National Human Genome Research Institute (NHGRI)
and Human Services (HHS)
