September 15, 2023
- September 6, 2023 - State Dementia Care Research Center (U54 Clinical Trial Not Allowed). See NOFO RFA-AG-24-033.
National Institute on Aging (NIA)
The purpose of this Notice is to inform potential applicants that the National Institute on Aging (NIA) will hold a pre-application technical assistance live webinar regarding applications for Notice of Funding Opportunity (NOFO) RFA-AG-24-033, “State Dementia Care Research Center (U54 Clinical Trial Not Allowed)” on Wednesday, September 20, 2023 at 3:30 PM ET.
RFA-AG-24-033 invites applications for a State Dementia Care Research Center (henceforth referred to as “Center”) that ultimately aims to improve care for persons living with dementia (PLWD) and their caregivers/care partners by building a research evidence base that can be used to improve dementia care coordination, integration, and care transitions in community settings, as well as inform policymaking. With recognition of the differences in provision, coverage, and access to Alzheimer's disease (AD) and Alzheimer's disease-related dementias (ADRD) care across the nation, this infrastructure resource will support research on social services and health systems within states. Specifically, the new resource will: (1) invite research on AD/ADRD care coordination, integration, and transitions within states; (2) foster the creation and integration of data on home and community-based services and healthcare data within states; and (3) support the dissemination of findings to community partners, the public, and policymakers. The Center will directly address AD/ADRD research implementation milestones on care integration with emphasis on healthcare disparities and policy by creating a consortium of scholars who will study AD/ADRD care coordination across settings, accounting for state-level and sub-state-level heterogeneity in provision, coverage, and access to services.
To inform research, the Center will build research-supporting partnerships and disseminate results and bring together scientists and community partners across settings (e.g., home, adult day care, social services, home health agencies, primary care, hospitals, health care systems, nursing homes, assisted living facilities (ALFs), and hospice providers). This Center will overcome existing research and data limitations by integrating program data with Medicare/Medicaid data within states to identify approaches that improve dementia care access, cost of care, and quality of care as PLWD go through various transitions of care in the community.
Applications should address forming research partnerships within institutions and across organizations at the state or sub-state level. At least two different states should be proposed in an application, with the goal of including more states in the Center over time. Each state should have pre-established within-state partnerships (e.g., state and/or county governments, adult day care, social services, home health agencies, primary care, hospitals, health care systems, nursing homes, ALFs, and hospice providers).
The Center should advance research on dementia care in order to promote the well-being of PLWD, care partners, and caregivers, supporting research that examines the extent to which dementia care programs meet any of the following key components of dementia care, supports, and services put forward in a 2021 National Academies of Science, Engineering, and Medicine report, Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers:
- Detection and diagnosis
- Assessment of symptoms to inform planning and delivery of care, including financial and legal planning
- Information and education
- Medical management
- Support in activities of daily living
- Support for care partners and caregivers
- Communication and collaboration
- Coordination of medical care, long-term services and supports, and community-based services and supports
- A supportive and safe environment
- Advance care planning and end-of-life care
Webinar Information
The live webinar will address questions submitted by participants prior to and during the webinar. Potential applicants are strongly encouraged to submit questions prior to the webinar to Dr. Elena Fazio. Please indicate “RFA-AG-24-033 Webinar" in the subject line of the email. Questions posted during the live session can be submitted through the chat feature.
Potential applicants interested in participating in the webinar should register using this link. Webinar connection information will be provided to registered participants.
This webinar is optional and is not required for submission to the NOFO.
Elena M. Fazio, Ph.D.
National Institute on Aging (NIA)
Phone: 301-496-3136
Email: Elena.Fazio@nih.gov
and Human Services (HHS)
